Parents of boy, four, with 'childhood dementia' say it's 'too late' to slow the disease - News Summed Up

Parents of boy, four, with 'childhood dementia' say it's 'too late' to slow the disease


The parents of a four-year-old boy with childhood dementia say it's 'too late' to slow the disease. Diana and Dean Young have revealed their heartbreak watching their son, James, four, suffer with Batten disease - otherwise known as 'childhood dementia'. He is pictured on his birthdayEventually, children with Batten disease become blind, wheelchair bound, bedridden, and without cognitive function. Batten disease is a disorder of the nervous system which begins in childhood. However, in September, the NHS finally agreed to fund a drug for children with Batten disease known as cerliponase alfa, after previously rejecting it.


Source: Daily Mail February 05, 2020 10:27 UTC



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