'My baby daughter’s dark wee was first clue she has incurable condition' - News Summed Up

'My baby daughter’s dark wee was first clue she has incurable condition'


‘It would stain the clothing dark brown or red,’ explains Josie, 42, a freelance psychotherapist trainer from north London. I Googled it and “black urine disease” came up. One of the earliest signs of the condition is dark-stained wee, as Josie witnessed, because HGA causes urine to turn black when exposed to air for a few hours. - The family are hoping that by raising awareness of this cruel condition, people will support The Alkaptonuria (AKU) Society’s pioneering research study SOFIA-Paediatric (Subclinical Ochronosis Features in Alkaptonuria in paediatric age). The Jeans for Genes campaign raises money for charities including The Alkaptonuria (AKU) Society.


Source: Daily Mirror September 13, 2020 06:00 UTC



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