The Hollywood A-lister and Emma Fogarty, who is Ireland’s longest-surviving person battling the genetic condition epidermolysis bullosa (EB), appeared on RTÉ’s flagship Late, Late Show on Friday night. Colin Farrell and his friend Emma Fogarty at the Irish premiere of The Banshees of Inisherin (Mediaconsult/PA)She will join him in a wheelchair for the final 4km of the course – with each kilometre representing a decade of her life. Born with no skin on her left foot and right arm, she experiences excruciating blisters on her skin from the slightest touch – the condition is also known as Butterfly Skin. Colin Farrell pays tribute to close friend marking her 'miracle' 40th birthday and reveals running a marathon with herHer and Farrell’s “Run to 40” challenge has now raised more than €500,000, with Friday’s appearance on the Late, Late Show alone pulling in €415,000. “There are four forms of the condition and Emma has the severest one,” he said backstage on Friday.

Source: Irish Independent October 20, 2024 17:26 UTC