(Submitted by Marco Fallico)It's a devastating blow to Shonna and Marco Fallico, Leia's father. Leia Fallico is battling dyskeratosis congenita — a rare genetic condition that causes bone marrow failure. "It should be such a broad registry that individuals shouldn't have to wait for a match," Mann said. Patients sometimes have to wait months or years for a donor, Mann says. She was diagnosed with acute myeloid leukemia in 2013 at the age of 24, and the only cure was a stem-cell transplant.

Source: CBC News June 22, 2021 07:52 UTC