Sign up for the Hot Topics newsletter for hot style and sex tipsA British mum fears “time is running out” to save her young daughter’s life from a rare, incurable and deadly disease. Aggie suffers from H-ABC, which is a severe form of TUBB4a leukodystrophy – a genetic disease that affects the central nervous system. Time really is running out for our daughter.”Aggie was diagnosed with H-ABC in June 2015 after undergoing an MRI scan. First identified in 2014, TUBB4a leukodystrophy makes up 9% of a group of about 50 rare neurodegenerative disorders known as leukodystrophies. Launched last year, the company is working on a new therapy it hopes will “revolutionise” how TUBB4a leukodystrophy is treated.

Source: The Star May 12, 2022 15:40 UTC