Website tackles an all-too-common problem with rare diseases: A shortage of information - News Summed Up

Website tackles an all-too-common problem with rare diseases: A shortage of information


Rare diseases present real challenges to patients and medical professionals. More than 90 percent of rare diseases lack a Food and Drug Administration approved treatment. But there’s hope for people with rare conditions, and a quick browse of the National Organization for Rare Disorders’ Rare Disease Database proves it. With rare conditions, there is strength in numbers — and more information out there than you might think. Curious about rare diseases?


Source: Washington Post December 07, 2019 14:03 UTC



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