By then she was studying design at the College for Creative Studies in Detroit and taking calculated routes across campus. The correct diagnosis, when it arrived, was unfathomable: GNE myopathy, also called hereditary inclusion body myopathy, or HIBM. Redlawsk has found there is no lasting way to navigate this steady procession to paralysis. As her lower body became increasingly stubborn, Redlawsk was grateful to be an artist, able to shape, draw, form, write, invent. Hazelroth, a concept artist at a video game company, is already fatigued from work and caring for his wife.

Source: Los Angeles Times June 21, 2017 18:43 UTC