'His ability to crawl or walk was stolen from Heath the day he was born,' says mum Anna Sutherland. Photo: GivealittleHeath Sutherland can't frighten his parents with the usual toddler two-legged antics because a rare genetic disorder prevents him. The condition means the brave toddler faces becoming "trapped in his own body". "Heath has spent his short, almost three years of life, fighting spinal muscular atrophy [SMA] …," Sutherland, of Rotorua, wrote on crowdfunding site Givealittle. The treatment, Spinraza, will change it all!!!"

Source: Otago Daily Times June 05, 2019 01:07 UTC