Ellie Pyle died at the age of just 13 while on a Disney cruise in Norway with her family. After receiving news of the extremely rare condition, which affects of the X chromosomes, Ellie's family vowed to help her live life to the fullest she possibly could. "The week before she went on holiday we had a private photoshoot with Cinderella which she loved. On September 1, following two years of saving and planning, Ellie and her family set sail on a Disney cruise. "I took Ellie on a Disney cruise years ago and I always promised her I would take her again.

Source: Daily Mirror September 27, 2019 20:37 UTC