There are 300 million people worldwide battling a rare disease, among them Swords woman Dara Woods. Dara, who was almost 40 when eventually diagnosed, explained how HHT causes blood vessels to rupture. HHT Ireland is part of the Rare Diseases Ireland umbrella group and is also a member of HHT Europe. The motto for Rare Disease Day 2020 is ‘rare is many, rare is strong, rare is proud’. Following a request from HHT Ireland, Fingal County Council agreed to light up Swords Castle in the Rare Disease Day colours for one week.

Source: Irish Independent February 23, 2022 21:01 UTC