Ayah's mother says she will never walk again. So Ayah's parents are raising money to get her treated in the United States, where Zolgensma was approved in 2019 for use on children under age 2. Mithika, Ayah's mom, is from Kenya while her husband, Frank Lundt, is Danish. "All we heard from the doctor was SMA, SMA," she said. Last year, Novartis launched a lottery-style program to provide the treatment for free to SMA patients under age 2.

Source: CNN March 31, 2021 16:07 UTC