The cystic fibrosis drug Orkambi could extend the lives of thousands of children – but it comes with a price tag of £105,000 per patient per year. Her diagnosis was cystic fibrosis, a genetic condition that results in a build-up of mucus in the lungs, making it hard to breathe. Pleasant, who is now 29 with a husband and a son, lives in fear that cystic fibrosis will cut short her life. But it comes at a high price: £105,000 per patient per year. This episode from February has been updated with a new interview with Carlie Pleasant.

Source: The Guardian January 02, 2020 03:00 UTC