She had seen the skeleton of Harry Eastlack on loan from Philadelphia’s Mütter Museum, where Eastlack had been displayed since 1979. Eastlack and Orzel, from Pennsylvania, both suffered from the same rare bone disease called fibrodysplasia ossificans progressiva, or FOP — "one of the rarest diseases in the world," the museum explained in an Instagram post. The disorder causes muscle tissue and connective tissue to be turned into bone outside of the skeleton. "We are honored that we could make this happen with the hard work and collaborative efforts of so many," the Mütter Museum said in an online statement. “I can’t articulate how delicate her bone is,” Anna Dhody, a Mütter Museum curator told WHYY.org.

Source: Fox News March 01, 2019 20:37 UTC