My Daughter's Rare Disease Taught Me How To Live With Fear And Uncertainty. Here's What I Learned. - News Summed Up

My Daughter's Rare Disease Taught Me How To Live With Fear And Uncertainty. Here's What I Learned.


“Your daughter’s genetic test results indicate a diagnosis of MERRF syndrome,” the doctor we’d never met before told us. Now I understand what it means to live every day with fear, uncertainty and despair. Microdosing hope, joy and action is a powerful antidote. And at the walk, with her siblings as her co-captains, Dalia proudly led the way in her purple wheelchair. Hope, joy and action make a potent cocktail, even when sipped.


Source: Huffington Post November 18, 2024 19:23 UTC



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