Two weeks after our daughter Sarah’s birth, my husband Ben and I found ourselves standing in a geneticist’s exam room. I placed Sarah’s baby carrier on the floor and she kicked her legs and cooed at my feet. Dr. Brown spoke with confidence, as if she’d had this conversation with enough people throughout her years of practice that Sarah’s diagnosis was obvious. Intellectual disability: Some people with Apert syndrome may test at a lower IQ than average and will need academic support. The anger and confusion morphed into unanswerable questions that infuriated me further: Why did this happen to Sarah?

Source: Huffington Post August 25, 2025 20:00 UTC