Mirryn suffers from a very rare disease called CLN1 Battens, which affects the nervous system and causes worsening problems with vision, movement, and thinking ability. Vicky, 34, told The Sun : "Like an elderly person with dementia she will stop breathing in the end. "It’s taking my little girl, piece by piece." "While spending time at Rachel House I have the use of a fantastic seat called a P Pod which I love and it protects my posture while I am lying in it. (Image: Daily Record)Batten disease is caused by the build up of fatty substances, called lipopigments, in the body’s tissues.
Source: Daily Mirror April 05, 2019 20:33 UTC