Photo: Stuff / Abigail DoughertyAn Aucklander who has a rare genetic disorder says moving her family to Australia last week was her only option to access a life-changing drug. She said being able to access Spinraza in Australia would allow her to maintain her existing quality of life. She said Pharmac should fund the drug for those with the disease so they could enjoy a better quality of life. However, Williams did not rule out funding Spinraza for a larger group of SMA sufferers in the future. "The decision we announced in December 2022 does not mean we won't widen access to nusinersen (Spinraza) in the future."

Source: Stuff January 22, 2023 20:25 UTC