Now the Gards are trapped: They face the absolute certainty that their child will die. The Gards have not been shy about expressing what they want: They want their child to come to the United States for treatment. As unpredictable as these diseases can be, what’s reliable is that with truly rare exceptions, parents are the best advocates for their children. They can recall only one other medical case that ended up in court due to a disagreement between clinicians and parents. He is, ultimately, the child of Connie Yates and Chris Gard and they know best what is best for their terminally ill son.

Source: New York Times July 06, 2017 15:38 UTC