Our fight for Givinostat is part of Archie’s legacy and that of every other child and young man that has not been granted the gift of a treatment. Givinostat is a prescription medicine that has shown an ability to slow muscle damage in children with Duchenne Muscular Dystrophy. It is estimated that approximately 110 children and young men in Ireland are living with Duchenne Muscular Dystrophy. We remain indebted to them all.”The Naughton family also expressed their gratitude to everyone who has supported them, whether through kind words or donations. 'Sweet 16' CampaignThe Naughton family recently launched the Sweet 16 campaign.

Source: Irish Independent January 09, 2026 16:17 UTC