However, doctors and charities say that flaws in the way medicines are approved in the UK mean children such as George could miss out. With type 2 — which George has — and type 3, symptoms appear later, and children can live well into middle age. The Lockley twins were born on January 28, 2011: George first, weighing 7lbs, closely followed by his twin brother, Harry, at 6lbs. In December 2016, the US Food and Drug Administration approved Spinraza for all SMA types. Liz is under no illusion that Spinraza is a cure, it isn’t, but it could help George retain some strength.

Source: Daily Mail February 12, 2018 22:26 UTC