Fibrosis fundraiser has skin in the game - News Summed Up

Fibrosis fundraiser has skin in the game


For the month of September, Julian Cox will be jumping on his bike and riding up Signal Hill at least three times every day in a bid to raise $30,000 for Cystic Fibrosis New Zealand (CFNZ). Julian Cox has vowed to ride the Signal Hill track naked if he reaches his cystic fibrosis fundraising goal. PHOTO: STEPHEN JAQUIERYThe inspiration for his campaigning comes from his daughter, Rachael, who has cystic fibrosis. "But because of Covid-19, the vulnerable cystic fibrosis community is unable to hold its usual fundraisers." He also wanted to use the campaign to raise awareness about Trikafta, an effective but expensive new drug for treating cystic fibrosis that is not at present funded by Pharmac.


Source: Otago Daily Times August 27, 2020 16:30 UTC



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