Her mother, Golden Whitrod (right) is committed to finding and funding the genetic therapy to save her daughter. Chris (left), Finn (top), Golden and Tallulah Moon enjoyed a day at the beach on International Rare Disease Day 2023. "This was a huge win for orphan therapies because it expanded the FDA Rare Disease Program and also expedited the review process. Golden Whitrod is pictured with her daughter, Tallulah Moon, a 5-year old living with the rare neurodegenerative disease SPG56. Original article source: Family selling dream home to fund life-saving treatment for 5-year-old daughter

Source: Fox News October 18, 2024 10:41 UTC