- Dana PearceWithout treatment, SMA2 gets progressively worse over time, leaving children unable to stand or walk, and can make eating and breathing difficult. Missed out on lotteryOn New Year's Eve, Kevin's family learned he was a candidate for two genetic treatments for SMA. Without a clear path to a free dose, Kevin's family is trying to raise the $2.8 million. His mother, Dana Pearce, says he's learning to speak and enjoys pointing at things around the house. Kevin's grandmother Jessica Verch is in touch with Pikwàkanagàn's chief and council to see how they can support the family.

Source: CBC News January 07, 2021 09:00 UTC