A Dublin mother is pleading with the Minister for Health to put pressure on the HSE to rollout a potentially life-saving treatment for her son. Fiona Bailey has spent the last few years fighting for her son Sam to get access to Spinraza. After much campaigning and petitioning the HSE finally gave the green light for these children to access Spinraza in June. "Not one of those 26 children have received Spinraza and we are absolutely heartbroken and devastated. "If Sam gets sick, he has no reserves at all.

Source: Irish Examiner October 16, 2019 07:07 UTC