Dreams turned to dust when doctors said Lauren had a rare condition at four days oldA CORK mum has spoken of the heartache of seeing her daughter live with a rare genetic condition that she says has blighted her life. Lauren, their middle child, aged 25, was diagnosed with CdLS within four days of her birth. “At eight months I met another mother with a CdLS child a year older than Lauren, and she suggested trying her with an eggcup full of baby rice. “There are other families in Cork with a CdLS child — in Fermoy, Ballinhassig and Midleton for example. Meeting that other mother when Lauren was eight months was a breakthrough for us.
Source: Evening echo May 09, 2018 14:15 UTC