Doctors quietly fight rare diseasesVietNamNet Bridge - They are pioneers in studying rare diseases and disseminating knowledge in the community. Tran Minh Dien, deputy director of the National Hospital of PediatricsFourteen years ago, no one had information about congenital metabolic disorders, and there was no therapy for it. However, the disease can be discovered through early screening and is curable 70 percent of the time. Many patients with rare diseases in Vietnam have to be treated with specialized imported drugs.In the US, one out of every 1,500 newborns has a rare disease. In the past, the therapy was considered impossible in Vietnam because the enzyme was too expensive.

Source: VietNamNet News March 12, 2018 00:56 UTC