The HSE has agreed to pay for two children to receive the only medicine available to treat their rare disease. Vimizim is the only medicine available to treat the condition and it replaces the enzyme that their body is missing. The drug is reported to cost €400,000 per person annually, and the HSE initially said they could not fund it due to cost. The girls and their families campaigned for Vimizim to be made available to them through the HSE. Cezy was with out medicine for almost two months.

Source: The Irish Times March 30, 2018 15:11 UTC