Photo / SuppliedEd Lee, pictured with wife Kalyn Ponti, says taking trikafta for cystic fibrosis has changed his life. Photo / SuppliedA handful of cystic fibrosis patients have been thrown a lifeline with a drug company offering to provide their "miracle drug" for free to Kiwis who have exhausted all other options. Trikafta is the first drug to treat the cause of cystic fibrosis rather than simply address the symptoms. Cystic fibrosis sufferer Ed Lee decided to bite the bullet and self-fund the drug a year and a half ago. A petition to get all cystic fibrosis patients the drug already had more than 35,700 signatures and would be presented at Parliament in September.

Source: New Zealand Herald July 07, 2021 05:26 UTC