Seven years ago, at age 57, Saran was diagnosed with frontotemporal dementia, a progressive, fatal brain disease. Similar fights could ensnare millions of Americans with dementia and similar end-of-life directives in coming years. AD“If you’ve got the resources, where you’ve got family and paid caregivers at home, you’re all set,” said Karl Steinberg, a California geriatrician and hospice physician who has written extensively about dementia directives. Wright says late-stage dementia patients who show any interest in food — a flick of the eyes, grunting or gestures, opening the mouth — should be fed until they refuse it. She wishes she had asked more questions before moving into her community and insisted on answers about how she would die once her dementia progressed.
Source: Washington Post January 18, 2020 14:03 UTC